Sunil has started to undergo an intensive treatment with both PCV and Avastin. It seems the tumor is growing more resistant and aggressive and Dr. Lassman wants to give it all they can to try to slow it down. Sunil's memory is starting to be effected and he is really worn down. It's getting hard for him to focus and he has lost 20 lbs. Marlon and I are a wreck. We are super worried about him. We are all trying to stay positive and are praying that the treatment will work. It is getting tougher for me to work. I think I may need to take a leave of absence to make sure he is taken care of. Also, I feel like I need the leave of absence for my own mental health.
We were able to go visit "Poppimom and Thatha" in Michigan last weekend. It was a good trip. Sunil spent most of it in pain and sleeping. poor thing. Anu and Anita, Sunil's cousins, were in town. Anu from Singapore and Anita from Washington D.C. They are lovely people and I'm so glad to get to know them and hang out with them. Anu is so sweet and a very smart doctor. Anita is HILARIOUS with her under-toned humor and dry wit she is too smart for her own good! :) We seemed to be able to laugh and have fun despite Sunil's condition.
I love my husband so much and would do anything to prevent him from having to go through this. In an effort to help, when there is nothing really we can do but pray and love, I've started a website to help raise money for Sunil. He worries all the time about not being able to work. I know there are a lot of you out there that would love to help but are too far away to come physically, so I've starting www.bastardtumor.com and have posted a way for you to donate through Paypal.com. It's perfectly safe, just donate to Sunil's email address firstname.lastname@example.org. It would mean a lot to us, and it will help us too. I don't think I am going to get paid if I take a leave of absence so every penny is going to count. Plus, since we feel strongly about giving back, we will be donating 5% of the proceeds to the American Brain Tumor Association.
I am praying that the next post will have a more positive message. Right now, it is battle time. It is fight for your life time. Sunil and I want nothing more than to grow old together, so please keep him in your prayers.